Patient Authors of Research Studies ▬ Health Literacy Out Loud

Patient Authors of Research Studies (HLOL #211)

Health Literacy
Out Loud

Health Literacy Out Loud: 5.01.2021 by Helen Osborne

Helen Osborne talks with Professor Woolley and Thomas Gegeny about:

 Patient authors. How including the perspective of a patient’s lived experience can help make medical publications more relevant, understandable, and accessible.

 Evidence-based ways to work with patient authors before, during, and after publication.

 Recommendations to include patient authors on many types of publications.

Professor Karen L. Woolley BHMS Ed Hons PhD CMPP has conducted and published more than 100 research studies on patient involvement and ethical practices in medical communications. She brings to this work extensive experience as a university professor, hospital director, journal editor, and senior leader at an international pharmaceutical company and a medical communications company. Professor Woolley and patients co-created the world’s first “Plain Language Summaries of Publications Toolkit.” They also co-authored the first-ever systematic review of the benefits and risks of patient involvement in publications.

Thomas Gegeny MS, ELS, MWC, CMPP brings more than two decades of experience in medical writing, editing, and publication. He is very active in the American Medical Writers Association (AMWA), having served as its president and been involved in many of AMWA’s professional development activities. This includes helping to establish the first-ever certification program for professional medical writers. Gegeny has worked as a writer, editor, and director of several health initiatives. He now is at Envision Pharma Group where he met and worked with Karen Woolley.

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LISTEN 24:55